So you know (or don't) how at my last appointment I was down four pounds. I was really disappointed in myself. But, my doctor told me that if I check my weight once a week (at least) and my weight goes up (the goal they set for me was to just gain back those four pounds), I don't have to go back on ...

Now, here we are, six months after diagnosis and a nasal polyp surgery. Cameron does his treatments and therapies without argument. Oh, there may be a little grumbling but nothing more than a typical 13 year old moan and groan. We disinfect nebulizers every other day, his dad hand delivers his hy...

Dr. Ran Anbar The first words he spoke hit the fear that was at the center of our hearts. "I know you have been on the internet and I know you have seen 37." Yes. I did. How could anyone miss it?? Of, course I had seen it and hearing him say it out loud annoyed me and frightened me all at on...

So, I had spent two days waiting to see the "CF specialist" who was going to take care of my son. My first born. The giant pain-in-the-neck who makes me laugh with stupid jokes. The one who eats salads with his fingers and grumbles about vegetables. The one who, still at the age of 13, hugs and ...

My 13 year old son was just diagnosed with CF August 2011. After having been home educated for most of his school career, Cameron and his sisters decided they wanted to give public school a try. It went beautifully. They made friends, succeeded academically and had access to clubs & sports to...

So for months now, off and on, I start burping really gross tasting burps... And pretty much every time, I end up throwing up every single bit of stuff in me. It's a lot. Tonight it happened again after being clear of it for a couple months.... Everythings been fine up until now... Only difference i...

After 29 years, I have finally been properly diagnosed. My entire life I have struggled with lung, sinus and ear infections. Diagnosed with asthma at 10 days old, I was treated with such inhalers, steroids and allergy medications. This seemed to do the trick for the most part, but something still...

Today, I'm seriously considering deleting, or deactivating, all my social networking accounts. The computer is taking like taking over my life. My grades have taken a hard hit. I just think they're hurting me more than helping me. It's not enough for me to just 'not go on the computer', because I al...

Successful Transitions: Give Some Independence, Gain Some Cooperation By Foster W. Cline, MD and Lisa C. Greene Up until now, in this series on transitioning from the pediatric to adult medical systems, we have focused on defining transition and why it matters. Now, we are going to start loo...

Start with an obituary: Fell Asleep at 65, What a Life. Now read between the lines: Of the time when she was six and thought that the roof of the shed was the top of the world and jumped with a pillowcase Parachute (one broken arm) She was fourteen that time she got drunk (peach snaps) in the f...