These few weeks that i have gone out on occasion with friends they always ask me if im mad , or in a bad mood. When i dont feel like myself or tired you can see it in my face. I am not rude towards them whatsoever yet they still say that it offends them when i look this way. These friends...

When my son, Owen, was younger, we would crank up the song "When the Sun Goes Down" during dinner time and he would eat.  This was pre g-tube when we were struggling to get him enough calories just so that he would make it on the growth chart.  The song w...

Today I woke up early and baked another batch of vegan oatmeal chocolate chip cookies for a luncheon at my sister's apartment. After I hurriedly made those, I began handwashing all my dishes. But there wasn't enough time to finish, so I left for my sister's place. Then when I got back, I finished wa...

I'm pretty excited that I just signed to run 2 5K's in the Fall! The first is on 9/11 and it's a Rememberence 5k. The second is a Cross Country challenge race. I've been wanting to for a while since my last one was last October. However the humidity here has been HORRIBLE. I've been running for a lo...

Today has been one of those days. One of those days where all you think about is, why did this happen to my child? One of those days where you can't help but think about the fact that your child has to live with a disease that you gave her, a disease that could cause her to have a shorter life then ...

I think my body may FINALLY be (almost) fully recovered from the day when I pushed myself a little too hard: the morning walk + yoga + stationary bike. It seemed amazing and productive at the time, but my body's been so sore and exhausted the past several days because of it, so I haven't been able t...

Yesterday I went with my brother Dillon (also a CF warrior) to this amazing quarry in Rockford, not too far from Maryville. It was quite a bit of a walk there and back, and it was TERRIBLY hot outside. But it made for a great workout. Then before I went to bed, I did another abbreviated (but more fo...

It's funny..Before I met Carlton, I had a plan for how my life would go. I thought I would find my soul mate and have at least one child by the time I turned 30. I never imagined that starting my family would be such a production. At 26, I had severe pancreatitis (for the bajillionth time) and ended...

As many of you know, Ronnie and I moved into our first home when we got married. We've posted a few photos, and I know we've raved about the yard. Our backyard is like a little oasis in the middle of the desert; grass, green, plants...the works. It is so wonderful....until you have to try to keep it...

My mom has always said that I'm a "Smart kid, no common sense" I proved that this weekend.My friend Lauren and I were going to visit Kyle (my boyfriend) for the weekend in Maine. Friday morning, being the smart, prepared CFer that I thought I was, I packed up my vest, nebulizer, and e-flow in my...