This is 1 of 2 slideshows that I have created for our Great Strides Walk team this year. Check it out if you have the time, I love constructive criticism and love compliments even more http://www.onetruemedia.com/shared?p=a4e5e2173d3ca4ae004aa8&skin_id=601...

 Hello All ~ It's been awhile since my last blog, things have been crazy! Both of my young men have been sick in the past few weeks. Luckily, I did not catch the yucky bug. Now, I must focus on getting all my ducks in a row before St. Patrick's Day. I am having sinus surgery on the 17th and wi...

I just want to take the time to say thank You to my Lord and Savior Jesus Christ. Today my baby girl is 19. She is truly a miracle. All CFers are miracles!! The Lord has blessed my family another year with Danielle. I believe if we keep the faith and keep our eyes on HIM, we will see a cure. Happy B...

I have been reading more and more here lately on the latest research and new drugs discovered to help people with Cystic Fibrosis. I want to say first that I thank God each and every day that these discoveries are being made. I thank Him for giving the knowledge to so many men and women who are dedi...

We found out late yesterday that I am officially listed for transplant at university of Pa hospital.  I know some don't follow my blog, so I'm trying to update those of you who were asking. I am top of the list for my blood type AB+, with the rarity of the type there is no estimate of wait time...

This past week has been pretty terrible for weather here in "sunny" Arizona. It seems like every time I get ready for a run, the skies open up and it starts to pour. I have to admit, it's really throwing me off of my game. I still start each morning out with a walk however by bundling up, throwing m...

Today I had my clinic visit at Children's Hospital Boston. My mom and I went into Boston early to enjoy the remnants of the nice weather at Castle Island in South Boston. We had a great time (and a great workout) walking out to the "island" and around the fort. We just loved all the characters o...

It's been on my heart for the past couple of months to do more than just smile at the CF clinic when I see others waiting to see the dr's. I really want to encourage as many people as possible as possible and hopefully by doing so it will show our son that what he has is something that help others t...

Rougher day today. My left pelvic hernia was driving me bonkers. Was really popping every single time I coughed, which made it hard to exercise because exercise leads to excessive coughing. (Which in turn leads to more pelvic pain for Rosie.) But I pumped out what I could. I rode the stationary bike...

I put together a website about my son, CF, and our Great Strides team, Peter's Pavement Pounders. I would love any input, advice, ideas for future posts, etc. Check it out! http://peterspavementpounders.org  ...