Tomorrow I have the opportunity to help increase CF awareness.  This is something I participated in last year as well. My CF hospital is a teaching hospital, which means there's lot of medical students around.  Last year my doctor asked if I would be interested in being interviewed about C...

This kid on CF Voice is AWESOME, proving that it's possible to bounce back, to turn your life around, regardless of all the difficulties you have. VERY inspirational for both CFers and non-CFers :)http://www.cfvoice.com/info/adults/videos/back-from-brink.jsp Follow the discussion ...

So Oprah is having this contest where the winner will get their own show. And after watching this clip, I would love to encourage people to vote for Zach Anner.    http://jezebel.com/5575593/if-oprah-doesnt-hire-awesome-cerebral-palsy-guy-someones-got-to   His idea for a show woul...

I never thought I would run into someone in my life who would have the audacity to take CF and use it as a joke, as an insult, as a personal attack. But unfortunately I did. It began with a comment months ago that was SO rude and insulting and over-the-top that I can't even repeat it. Trust me, ...

http://lulusinhaler.blogspot.com/

Good news to all you Eva fans and followers out there... The DVD is now ready to order, and a presale is taking place until the end of May. Check out the info below, and make sure to get your copy ASAP!   "Hello Lovely Friends of Eva & 65_RedRoses,If you live in Canada or the US you can n...

This is my second Great Strides Walk. I attended the walk for MS last weekend, and it was awesome. There were boths and vendors, tables, and a pancake breakfast. The CF walk looks pretty small compared to the MS walk. The Cystic Fibrosis Foundation closed the Chapter in Colorado Springs. Any ideas o...

I completed it with the help of a friend who's a professional photographer.   Please send me your feedback/thoughts! And please feel free to share! : )  Lindsay's Lungs from priscilla gragg on Vimeo.  ...

This past Saturday was Memphis' Great Strides Walk at our zoo. Well if you live in the neighboring areas, or just keep up with national weather, you know we didn't have suitable weather conditions for any outdoor events. I don't know what it is with Memphis and the Great Strides Walk. I mean last y...

The bottom line is, I'm doing this poetry contest so that people will express their true stories, not just the stats and the exercise and treatment plans and promises- but WHO ARE YOU and WHAT's YOUR CF STORY? I think that poetry has the power to teach people about CF. I hope you consider the contes...