It can be very tough when you first find out your child has CF; you might not even know where to start. In this Video Short, CF parents and experts share their personal journeys and provide tips on what’s worked for them to cope with their child’s CF, from the diagnosis to everyday life.

Be sure to watch the video, share your thoughts, and ask questions!

Okay, so every once in a while I bump in to my friend, Elise. She's a mom, like me, to a kid with CF, like me. Problem is she's all the way in Cal. i. Forn. I.A. and I'm in Spain so when we do bump into each other it's online, not like we used to when she would make the trek back to Iowa and we'd...

So since early march thru to may i've been running to increase my overall fitness, which today was proven to be worth every km that i've ran which in total has been 110 in the last 2 months, i think that's pretty good, So today was my 1st clinic appointment since being discharged from hospital and t...

ok so here's the thing, I am pancreatic sufficient but i do get pancreatitis from time to time. The docs want me on enzymes but I don't take them as I manage my weight pretty well on my own, and i deal with the pain from the pancreas when it happens. But my question is this, how many of you deal w...

These steroids are driving me insane. My sugars are constantly through the roof, despite constantly changing my insulin routine. I'm up to 30 units of 70/30, not to mention all the corrections. They are making me a huge mess of emotions. Like I seriously mean a HUGE mess of emotions. They're mak...

Has anyone heard of the whole kony 2012 thing? If not youtube it. :) The Kony 2012 thing was blown up just by the use of the internet and I think we should make cystic fibrosis famous the same way! Using the power of the internet. Blog about it. Facebook about it. Tweet about it. Hash tag it. Youtu...

The Children's Hospital Boston in coordination with Brigham and Women's Hospital will host an event at Wheelock Family Theatre. COME SEE AN AMAZING MOVIE!!! COME LEARN ABOUT ORGAN DONATION!!! We will show the powerful documentary THE POWER OF TWO, about two twins' journey through cystic fibro...

Our four-year-old son was featured in an article in our local newspaper (Nanaimo Daily News) today. I'm trying to post the link here, not sure if it will work. http://digital.nanaimodailynews.com/epaper/viewer.aspx Happy Reading!

GASTROPARESIS...Y U NO GO AWAY?! So the last time I threw up was...uhh...a few days ago. I really didn't have much nausea yesterday, but I've been nauseas today. And sleeping. Like...a lot. And I have clinic tomorrow. Oh, my family raised around 2,270 dollars for the CF walk. Pretty good. Pre...

Well to start out, not only did people around me have doubts but I myself had doubts about attending public college. I graduated two years ago, June 2010 and I had been home instructed through my high school for two and a half years. I got to walk with my class and sing with my high school choir at ...

For some cute pictures of my girls see my actual blog http://headingfortoddhome.blogspot.ca/2012/05/wacky-weekend-fun.html Well we this weekend Carrie and I decided to get out for some family fun. For starters, we finally saw some weather that almost resembled summertime. This weekend was ab...