Questions / All
 
asked by
Shirley Woloszyn
on Jul 29, 2010
13 Views 0 Answers
So I was told that in my current state I would definately not last a pregnancy. I do want to have children some day and I am currently being evaluated for the transplant list. I was wondering if anyone knows about pregnancies post transplant. I know you cannot believe everything you read online, but...
 
asked by
Tiffa Adkins
on Jul 29, 2010
CFF pharmacy?
Medicines
31 Views 3 Answers
I'm getting Cayston through the CFF pharmacy. My question is do I need to call them to refill the prescription or do they automatically refill it and send it? This is the first time I've ever used them! Thanks :-)
 
asked by
olivia pence
on Jul 29, 2010
Ports
CysticLife
35 Views 4 Answers
ok... so i have only had my port for maybe 3 years... and i really dont have alot of problems with em.... but this one nurse i keep gettin to flush it.... makes it bruise up like no other... and after she is done flushin it has about 2 guaze pads worth of blood..... and no it doesnt hurt hurt.... bu...
 
asked by
Ronda Whitter
on Jul 28, 2010
62 Views 6 Answers
I was wondering if anyone else was on TOBI on28 days and off 28 days  and it caused Brochospasms with PFT decline.   Our Whitney who is 7 would be fine and then after starting the TOBI she would start coughing. We thought it was that the anitbotic was working the infect...
 
asked by
Jackie Estes
on Jul 28, 2010
Salt low?
Food and Nutrition
73 Views 5 Answers
We all had/know about a sugar low, but have you ever had a salt low? A week or so ago I felt really odd, kinda like a sugar low but different. I had been in the sun all day and had sweat a bit. I ate chips or something salty, I don't remember exactly what it was, but a few minutes later I felt okay ...
 
asked by
Toni Bolster
on Jul 28, 2010
60 Views 9 Answers
I'm currently in the hospital. It seems that every time I'm in the hospital on IV antibiotics, I absolutely starve. I am literally eating 2 meals at every sitting and still feeling hungry in between. Does anyone get this and if so, why does it happen? It's increasingly frustrating because I gain so ...
 
asked by
Sydna Marshall
on Jul 28, 2010
Denufosol
Clinical Trials
67 Views 4 Answers
Is anyone else on the Denufosol trial drug?   It's a double-blind study but whatever I'm on definitely has a taste.  I'm thinking it's the real drug. I signed up to do the 3 yr. additional trial.  I like it better than Hypertonic Saline.     Anyone else have any thoughts...
 
asked by
Shana Majesty
on Jul 28, 2010
Stomach inflammation
Food and Nutrition
68 Views 5 Answers
My 2 year old, who got a g-tube at 11 months, totally quit eating around 10 months. We have ran several trying to figure out why she will not eat & has no desire to eat. GI has done an endoscopy to check anatomy, gastric emptying study, check for bacterias & infections in blood, stool, stoma...
 
asked by
Kristina Eaton
on Jul 28, 2010
82 Views 6 Answers
How do you find out which gene mutation you have? I don't know mine and I'm curious as to which one it is.
 
asked by
Kristina Eaton
on Jul 28, 2010
67 Views 7 Answers
I take so many pills in the morning I hardly ever eat before school. Does anyone else take like 10 or 11 pills every morning and like 6 or 7 before they go to sleep? It gets so annoying and my pills just fill me up and I can't stand it.
The content on CysticLife.org is not medical advice. Be sure to consult a medical professional when determining which course of treatment is best for you or your loved ones.