Hi i am from Lebanon Middle East my daughter 7 month old was diagnosed with CF at 4 month old, shes on Kreon pills and physiotherapy for lungs every second day. Am not sure how much they are advanced here in Lebanon regarding CF but her Drs are the best in our country.Could anyone help by giving me ...

Are there any drugs on the pipeline to help treat cepacia? I know there's lots of things out there for pseudomonas but I haven't heard of anything lately for cepacia.

Our doc has mentioned that Cayston might be something we look at soon, but we're waiting to hear how insurance is going to handle it. We've got Anthem Blue Cross/Blue shield, (insert your choice of expletives to describe them here) and I know that their specialty pharmacy isn't one of the pharmacies...

Anyone know any tips or "natural" approaches to improving muscle function in the GI tract?   Dr's think Ayla might have S.I.B.O. (see my blog for tons of info on SIBO) www.thebreathingroomcf.blogspot.com    

My son had his clinic visit Monday and they called me today with results from his lab work. His iron levels were low and his glucose was high. The nurse said normal levels are between 74-106 but his level was at 130. They want to order a fasting glucose check. I'm waiting to see if I can do it at a ...

Ok...so I just got Cayston in the mail today from the CF Pharmacy. A few years ago I used the eflow when I was in the Aztreonam study, so the device itself is not new to me, but at the time I was not sterilizing my neb sets between each use (shame on me) so I feel like I am learning how to properly ...

Hello, I am a mother to my 4 month old daughter who was just diagnosed with CF. I don't know what her mutated genes are yet, but they did say she has Atypical CF. I was wondering what Atypical meant?

Any suggestions on companies that will provide good insurance for CF's traveling overseas?

Hi Everyone, My cousin is 19 years old and she has CF.  Today the doctors told us that her lungs are getting worst and that we can consider her lungs completely untreatable.  What happens now?  What can we do to help her as she lives in Lebanon and we do not have enough resources and...

Hey Cystic Lifers....We are looking for people to help with the Millionfor1 campaign...We are trying to get the word out and basically getting 1 million people to donate $1 to find a cure for CF. Post your story on the Facebook page and share with your family and friends!! Follow us on Facebook htt...