As I move further into adult world and away from my parents it is logical that my boyfriend/life partner will become my number one advocate. I am concerned about his abilities to do that. I have come to notice his communication style is rather indirect and even when he asks for something it is not c...

So, Im getting married aug. 8th & my doc & social worker say i cant make it "legal" b/c my hubby 2b is a musician w/ no insurance. I have Medicare as my primary, then United Health care under my (retired) father as a "disabled dependant", Then i also have title 19(i live in WI) as a 3rd ins....

You have until the end of the month to enter the poetry contest that is open to all ages, patients and non-patients, to submit poems about life with CF.  http://patientpress.blogspot.com  What You Should Submit:We like funny poems. We like sad poems. We like goofy poems. We like angry po...

Now accepting orders for Cystic Gal and Guy T-Shirts!Price is dependent on orders received, but will be about $16. Click HERE for the Order Form   * Gal shirts are in ladies' sizes and cut to fit ladies well :) **Guy shirts (all gray shirts) are in men's sizes, standard t-shirt cut. C...

Conner is a little boy with CF that is not doing well and this sweet family is facing things no family should go through with their 7 year old. They are trying to come up with the money to plan a funeral, but struggling. You can keep up with them at their blog http://www.notsobrightandshiny.bl...

As someone who can say, "ive been there." and "ive done that." Is there something you wish people could answer? You ask that same question over and over again and yet no one seems to have the answer? We all have loving families, doctors and nurses that care about us and child life specialist that a...

This is more of a request than a question, but I hope everyone will take the time to email their Senator in regard to the Improving Access to Clinical Trials bill.  Currently, enrolling in a clincal trial can disqualify patients from receiving SSI benefits.  As everyone knows, CF is a rare...