So I have heard good things about the Nashville center anyone go to the Memphis center. Any info would be great!

So I have CFRD that is well controlled.  The nurse practiotioner I see (in the endo/diabetes clinic, she works with all the CFRD patients at my hospital) always wants to see me every 3 months.  I really don't that's necissary though.  Like I said my CFRD is well controlled, she's alwa...

I've been wondering... why doesn't a CF Clinic Team include a Gastroenterologist that specializes in CF related issues? Any thoughts?  ...

I was just wondering if anyone had been to clinic since Martha resigned? Jess goes for her first visit this thursday. Also when you have been to clinic have you seen the whole team? Jessica hasn't seen the Social worker or Dietician in some time. It has been brought to our attention that someone who...

Hey everyone... so we are moving to maryland soon... of course nothing about moving worries me...but our Bella.  Not only is moving stressful and (traveling) dirty but theres that big deal with finding good care for her..again.  So this brings me to my questions... John Hopkins or not?&n...

Was wondering if anyone else goes to louisville cf clinic, how long been going, and your opinion of the care you get. Thanks

I feel so frustrated. I feel like I am not getting all the information about Elina from her CF clinic. After every CF clinic we get a written update in the mail about a week later. For the most part they are accurate and say very little. Once the update came back with information that she had in...

Now, let me start off by saying that there are a myriad of reasons that I am still with my pediatric CF team- proximity, been here for 30 years and trust them with my life, heard not so good things about the adult team that I would transition to, if it ain't broke don't fix it, etc. Question is, be...

I just had a quick question about sputum culture results. We changed clinics in the last couple of years and naturally they do things differently and I don't do so well with change :) When you receive your results back do they simply tell you what you are culturing or do they give you an amout as ...

So my daughter is 3.5- I have arranged for her to have her very first PFT test tomm morning (mon) @11 am.  Our clinic doesn't typically do these test on kids under 4-5 yrs of age.   But I have seen some infants are having these types of test done and felt like I should get the test done o...