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Life After the Diagnosis-
This guide helps newly diagnosed parents through the months following their child’s diagnosis.
Life After the Diagnosis
is a part of the
Living with CF
series.
CysticLife.org Flyer-
Want to help spread the word about CysticLife.org in your community? This handout has all the information people need.
The Faces of CF-
Want to tell your friends and family who CF affects? Need a tool to help you fundraise? Put faces to CF with this half-page flyer.
Informational Flyer-
Want to help educate your friends, family and community about CF? Need a tool to help you fundraise? This flyer will give them all the facts.
Bringing CF to School-
Learn how to work with your child’s school when it comes to CF. This handout helps explain what a 504 plan is and how you can set one up for your child.
CF and Exercise-
Adding exercise to your CF care plan is crucial. This handout explores the benefits of exercise for people with CF and how to go about starting your own exercise plan.
Snacking Your Way to Improved Lung Function-
People with CF need to consume a lot of calories. This handout is a guide to easy 100, 200, 300, and 400-calorie snacks.
Caring for Your Infant-
This booklet helps parents navigate the first year of their child’s life.
Caring for Your Infant
is a part of the
Living with CF
series.
Caring for Your Toddler and Preschooler–
This booklet guides parents through the early years of their child’s life.
Caring for Your Toddler and Preschooler
is a part of the
Living with CF
series.
The Elementary School Years-
This booklet discusses the process of transition, school issues, health guidelines, and advice from other parents for school-age children with CF.
The Elementary School Years
is a part of the
Living with CF
series.
Staying Connected as a Couple-
This booklet teaches parents how to stay connected as a couple while parenting a child or children with health issues.
Staying Connected as a Couple
is a part of the
Living with CF
series.
CysticLife Resources
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videos, reading materials and links.
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The content on CysticLife.org is not medical advice. Be sure to consult a medical professional when determining which course of treatment is best for you or your loved ones.
