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946 Views ● 3 Comments
Exercise
I did it!! I ran in my first running race ever, a half marathon. I must say, I always thought 13.2 miles didn't sound like a very long way to go, but 2 hours and 4 minutes later, it felt long....but let me back up a little and tell you how it all went down. My brother, Josh, dad and I ...

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questions
884 Views ● 1 Comments
Hospital Stays
As some of you know, I am having Thanksgiving in Shanghai with my family (my parents live there), so I flew out of Phoenix on Saturday morning. Most of you are quick on your toes and have realized that I am going sans Ronnie, and worse yet, I’m leaving him all alone in the Hole. I must say,...

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questions
781 Views ● 1 Comments
Tips and Tricks
As some of you may remember from my previous posts, I am training for a half marathon that is at the end of this month. I ran yesterday, as Sundays are my days to get a long run in, but I really really really didn't feel like running. I could think of a million and one reasons why I didn'...

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questions
Cystic Fibrosis
As some of you have read in past posts, I often say that I'd rather have Ronnie with CF, than date the man Ronnie would be without it. I truly mean that. I believe Ronnie has been shaped by his CF and many of the character traits that I have fallen in love with have been instilled in him beca...

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questions
Cystic Fibrosis
  Last week I read an article that got me really thinking. It was splattered with ethical dilemmas and question arousing issues. Read THIS article first, read the blog, and then share your thoughts... The CF community is faced with questions and situations that could never ...

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questions
1261 Views ● 3 Comments
Medicines
I had a first this last week. It was the first week I ever dated myself while on my period. "WHAT ARE YOU TALKING ABOUT??" you ask? Let me explain... As many of you know, Ronnie decided to do a burst of Prednisone to get rid of some of the inflammation in his lungs. AND, as many of ...

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questions
744 Views ● 4 Comments
Cystic Fibrosis
 "The Clearing of the Fog"    Sometimes my mind and body become cluttered by a kind of fog. It’s a slow confusion that starts with a weak moment and results in a sort of slump. In this hole, I forget my strength, my willpower, even my true self. I get lost i...

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questions
744 Views ● 1 Comments
Cystic Fibrosis
So, I'm gonna change the link to 'my site' from my old CF informative site to my GreatStrides walk-a-thon home page. So I figured I should put the other like somewhere elseeee, at least for now XD.   http://www.freewebs.com/breatheeasycurecf ...

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questions
945 Views ● 5 Comments
Transplants
Is it wrong, that when there is bad weather or the potential for there to be more accidents (holiday season) I see the positive side? What I mean by this is, today here in New Jersey, dozens of roads were closed due to black ice, my mom said "you'd be driving along and every once in ...

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questions
689 Views ● 2 Comments
Lifestyle
  AHHHHHHHHHHHH! That was my scream to let out all the stress of the "final stretch" of the semester... the reason I haven't posted in 10 days! I am about three quarters of the way done with everything... and I don't have anything due/finals until thursday. So I'm t...

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questions
962 Views ● 7 Comments
Relationships
I have to be honest with you guys, I've been getting a little stir crazy these last few days. As I've said in past blog posts, I actually like hospital stays. Ronnie and I tend to have a lot of fun while he's in. It's a good opportunity to spend time together, with no distrac...

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