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I am a nurse by profession, a mother by the grace of God, one of my daughters just happens to have CF. I am a fiance, a daughter, an Aunt......I wear many many labels and all of them is a caretaker in one form or another, this is my lot in life, i enjoy it, i thrive in it, but when I percieve fai...

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questions
812 Views ● 5 Comments
Family
I have to say that the last 2 1/2 weeks have been horrible!  We finished out the year and began a new year with bad chest colds.  I have 4 girls, 3 with CF.  Can you imagine what we did everyday for the last 2 weeks?  Try treatments for all three girls every 4 hours. ...

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Food and Nutrition
My 23yr old daughter who has a G-tube was recently at a CF clinic appt. This is a new Cf clinic that moved from Panorama Ca to Los Angeles. All new teams and different ways of addressing different issues. One that has us a little puzzled is that the dietician wants her to add 1tsp oil to every on...

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questions
795 Views ● 4 Comments
Family
Christie was a typical teenager when we met. She was small for her age, due to her CF. She had the most infectious laugh and accepted me immediately. Christie loved to go to Rock N Bowl on the weekends with her friends. She was a good girl who had many friends, but like many girls her age, she wo...

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questions
864 Views ● 1 Comments
Lifestyle
Well this is my first entry here. first of all I want to say a big THANK YOU!!! to Ronnie. He has been a wealth of infromation for a first time parent of this disease. When I fist found out what CF even was i was devistated and questioning God on how he could put someone so innocent and harmless ...

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questions
901 Views ● 2 Comments
Exercise
My bloggy blog I kept/keep about my super awesome life pre and now post lung transplant. http://oceandesert.blogspot.com/2010/01/first-5k-for-duns.html

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questions
679 Views ● 2 Comments
Lifestyle
It's pretty cool, how it will let the CFers and Family/Friends to keep in contact with each other.  If anyone wants to chat, im open to talking. 

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questions
1026 Views ● 2 Comments
Transplants
This is post from my blog "jamiebug"   I really like to focus on how much better my life is now that I have new lungs. Believe me I wouldn't change it for the world. But to be a little more "real" or I guess to put it, lets face the reasons Cystic Fibrosi...

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questions
771 Views ● 5 Comments
Exercise
My 2010 Largest Goal this year is focused on Excercise.  I was a pretty good swimmer before my transplant. In fact I was a RED CROSS certified level 7 swimmer along with being a certified swim instructor. It became too difficult for my body to endure the intense energy and endurance swimming...

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questions
836 Views ● 2 Comments
Cystic Fibrosis
Sorry I have been away for so long, but I am back now..........here's a poem that I wrote that I would like to share.   FRANTIC FIGHT I'll say this again but I need to be clear I'm aware of your strength your power over me at times Some people say this i...

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Lifestyle
If any of you read my info, I am Realtor in the Philly Area.  Well last night I watched the Sixers pull a win out of their jerseys agaisnt Chris Paul and his Hornets.  I started my nightly meds and played a little Tiger Woods Golf on PS3 to keep me busy.  I'm a true Night Owl a...

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