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questions
864 Views ● 9 Comments
Hospital Stays
Conner's been fever free for over 20 hours now, we stopped the IV zosyn and whalla! he's improved greatly! So we will go home tomorrow or thursday am and be Hawaii bound for his make a wish by SAT!!!!!!!!!!! Ha HA cf, you didnt win THIS ONE!!!!!!!!!!!

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  I love waking up in the morning to her morning breath  and her saying "mommy, the sun is awake!". There is rarely a time when she doesnt start my day off in a really great way, I love this age and all of the curiosity and imagination that comes with it. Natalie is 3, but...

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questions
1111 Views ● 7 Comments
Cystic Fibrosis
I have been a part of Cystic Life for a few days now and have wanted to write a blog but didn't know what to really write. I am sitting here tonight reading other people's blogs balling my eyes out. There are so many amazing, inspirational, sad, funny, beautiful stories out there tha...

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questions
1308 Views ● 10 Comments
Transplants
My transplant was back in 2001, before the time of "blogging." I do blog now, but at the time, the way my family and I communicated with friends and family (and the many people the emails were forwarded to) was via email. I lost a few, but my trusty best friend, Wendy, had saved every s...

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questions
715 Views ● 3 Comments
Cystic Fibrosis
So after writing my last blog and reading Ronnie's response, I can't stop thinking about my "normal" life and why I can't figure it all out. I think I ultimately feel inadequate in my conventional life. Like how I ended my last blog, without CF I wouldn't have anything g...

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questions
729 Views ● 10 Comments
Cystic Fibrosis
Hello everyone i just wanted to say Hello and interduce myself. Im Jessica, almost 23 i was diagnosed when i was 10 years old. I have a port and a feeding tube. I have been able to spend most of my time out of the hospital and i'm starting to be advised i probably have CFRD and that scare...

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questions
Cystic Fibrosis
Hello to All who read this! (Sorry if this is really long) I suppose I'll start of by introducing myself.. I'm 21 years young, almost 22 (February 8th). I live with my both of my parents and my cat Roxy in New Jersey. I was diagnosed at 4 months of age, and have lived a pretty m...

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Just wondering if CFer's have a certain type of movie they love to watch.  Maybe its Comedy/Funnies because they want something to brighten their days.  Drama wit all their Dramas,  Thrillers.  I'm a fan of movies that catch my interest.  Haha that don't reall...

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questions
968 Views ● 3 Comments
Health
  Did you know that if you have CF, you may have Celiac to go along with it? Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, a...

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questions
738 Views ● 2 Comments
Treatments
This should be interesting, NOT!  A couple of my children love to write, I am not sure where they got that from. Trying to figure out a topic is not easy. So, here is what I came up with....  You see yesterday was just one of those days when I had to hoist my backside up to do ...

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questions
1083 Views ● 7 Comments
Lifestyle
Okay, so everyone is settling in to CL and finding their way around......I just have to tell you guys that this has become my new addiction. When I wake up, after our morning routine of course, its the first thing I want to do..... I wonder if I can help someone out, I wonder if someone answered ...

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