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I don’t know about you , but our family. is always intrigued by what other CFers use in doing their treatments and in sanitizing equipment. My son is using&...

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hi just curious for those of you that take the medication  Orkambi is there assistance you can get for affording it 

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Hi All,   Does anyone know if there is a group that takes unused CF meds or supplies?  Thank you!  

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Just wondering what people's average O2 sats are. I hear people saying things like "I de-sat to 93 when I exercise" or "I de-sat to 90 when I sleep". I still have fairly high lung function, but it's totally normal for me to hover right around 90 - when I'm healthy. My doctors have never seemed conce...

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Hi! I know this was asked but it was a few years back now.  To my complete surprise, two weeks ago I was diagnosed with Stage IV Colon cancer that&nbs...

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Any advice on dealing with my sons cf diagnosis 

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we adopted our 9 year old son from foster care a year ago. I was his treatment coordinator when he was 4-6 years old. When he came up for adoption my&...

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So my mom has a hot tub and we have a huge family and all our kids love to play in the hot tub. My Ayla (4) hasn't been allowed to get in bc we were worried about psuedomonas and our dr basically said: " if u want to risk it, go ahead" What do you guys think about this? Do your kids get in? What...

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Hello my name is Becca I’m a mother of a 11 year old boy who has CF. Lately he tell me that  he can be responsible and take how medicine an...

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is there any cf mutation in that. The effects (lung infections) will shows up for a time. and goes idle for a long period. and shows up again??? am a 22...

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Is there anyone out there with b. cepacia (specifically ceno cepacia) that has been able to get a lung transplant and has done well? My doctor says that no ...

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