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My son has recently developed a rale in his chest that can actually be felt by hand. It’s causing a constant uncontrollable cough. X-rays shoe nothing remarkable&nb...

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Hi Cystic Life community!  I'm looking to obtain/ buy or preferably have insurance cover a hand held procussipr device.  I would prefer one that I can use ...

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I've had la couple of hernias in the past. I had 2 inguinal hernias (groin) when I was 8. They put plastic type mesh in. Then last year in 2013 I had 3 hernias. The two inguinals had broken down the mesh over the years and needed fixed again and 1 apparently was moving inside downward into m...

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Hey Guys! I'm trying to look for anyting to imporve my health and that includes exerize (sigh). I have a really hard time running, as most of us do, and&...

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 Does anyone on here have a monarch vest  that would be willing for me to ask you a couple questions about it?  I recently received one, but I am...

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I've been struggling a lot over the last couple of years, and I've asked on multiple occasions if MAC might be the culprit. I have frequent night sweats,&nbs...

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Hello out there! Have any of you tried Kalydeco, and if so, did you find it helpful? I'm new to Cystic Life and, in a way, CF. I've been fortunate enough to be relatively well my 41 years (though I have had polyp surgery, digestive issues, and asthma/allergies my whole life). For that reason, I ...

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What is the "thing" you wish you knew about sooner when your baby was born?  Hi, I am creating 25 care kits for newborn families that have just b...

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Does anyone else have Delta F508 and R117H? I am so interested in hearing about the progression of the disease in those with this gene combo. How are you? How has your health changed over the years?

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I am wondering if anyone has had issues with the e-flow trio / altera nebulizer. Have had numerous problems..turns itself off, poor connectors don't allow to medicati...

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has anyone had this procedure done? Can you give me details... did it work? How was the recovery? What doctor did it? I see Dr. Eskew in Austin and trust&n...

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