Feedback
CysticLife - A Cystic Fibrosis Community - Question

Questions / All

Do you have any tricks on how to pack in more calories when I am not hungry? I don't have the greatest appetite and HATE breakfast. My stomach allways ...

read more  
Hey guys! Lately I have been experiencing a lot of pain in my lungs and upper back. I use to only get this sort of pain when I was having an exacer...

read more  
I have been taking orkambi for almost a year. It has made some great improvements on my health and I was wondering if any of you have been taking orkambi&n...

read more  
Hey guys, I have been stuggling with chronic chest pain for a few years now and nothing seems to help (minus morphine via IVs) any one have any ideas as&nb...

read more  
So, my children are growing up and with that come some of the complications with cystic fibrosis. My youngest has had a very difficult year.  He is 12.5 an...

read more  
Hello CF peeps. I have been thinking about the number of days people with CF have to spend away from home because of CF. So it led me to my poll question. What is the longest amount of time you have had to stay in the hospital? This can be for any sort of hospitalization (CF related or not).

read more  
I need so information on getting assistance with my kalydeco copay mu healthwell grant ran out of funding I can't get Medicade work full time but by the tim...

read more  
My free steam sterilizer from CFS Pharm needed replaced after three years and I was excited to find the WABI Baby Sterilizer and Dryer. It has a built in dryer after the steam cycle so after one hour your nebulizers are steamed sterile and completely dried. This is a great feature to have since it...

read more  
If a doctor is looking for a 3rd CF mutation and finds it; does that mean one of the parents also has CF?  

read more  
Curious what advice dentists have given CFers on the best time to brush teeth.  We have been brushing right before morning treatments and I'm wondering if it&nbs...

read more  
Have any of you had experience with either the afflovest or the monarch vest? My doctor recommends the monarch vest, but they told me it was recalled by the&nbs...

read more