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My son has had a mic-key button for over a year now - no issues. He just got a new one before New years and for some reason the past couple days it's difficult to close the mic-key button cover and it pops open. Anyone experience this before and can tell me what's going on? I want to also add the NP...

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I have an old Pari that I'm using now. It's rattling and old. I had the Mobileaire (sp?) huge heavy one - the 50 psi and it was fast - BUT it broke after about a year, and that thing was expensive! I want something more portable too (my son moves it from room to room). I'm reading about Ultr...

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Is there anyone here who receives their CF care in Oregon or Northern California? I am moving closer to my kids and I am looking for input regarding care options. My son lives in Santa Cruz and daughter lives in Eugene. Thank you in advance!

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Has anyone followed this? http://dutchmagicfactory.blogspot.ie We will be started it in the next few weeks (second time - last time we had difficulty sourcing the correct strenghts) thanks Kate

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Ammonia levels in blood--my son's blood ammonia level is continuing to stay elevated (range goes 13-34) and his is now at 66 and a few months ago it was at 70. He has cirrhosis and has started to develop varices but has not had banding done or any bleeding from it. He is 16. At what point should I b...

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https://goo.gl/forms/1u9ydx6qcKQxeIU92 Hi guys! I am doing a research paper on the correlation between chronic illness and risk taking activity in teens, and have a short survey that I need people to take! Everything is completely anonymous and questions are optional, so if anything makes you unc...

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My 2 month old grandson is not keeping down his food and gaining weight, like they want him too. If he doesn't gain weight by the end of the week, they say the may want to start tube feeding him. We know nothing about this yet , but have a feeling we're about to find out. My question is, Is there...

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This is a new thing for me and I'm hoping someone else has either had this happen or can shed some light on what it might be? I started with a sinus infection that has gone into my lungs (as usual) but it was all very, very sudden (which is unusual but I believe is due to a stomach bug). My thro...

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So I am being treated for non tb mycobacterium avium complex. With clarithromycin, rifampin and ethambutol. I suffer from anxiety and depression but it has been always kept at bay and never been a serious interference with my life. I took 600 mg of rifampin 2 nights ago and the following morning and...

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LAUREN MELISSA KELLY SCHOLARSHIP PRESENTED BY: UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION DEADLINE: June 30th 2017 WHO MAY APPLY: Adults with cystic fibrosis who are pursuing career certifications, associates, and bachelor’s degrees Award: $1,500- $2,500 Application a...

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My 5 yr old with gtube experiences weird tummy pains and vomiting 2x/year for a week or so. He's on daily probiotics and takes Zantac and Prilosec for reflux. Vomiting occurs an hour or so after a feed so it feels like reflux over delayed emptying to me, but not sure. He was put on delayed gastric m...

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